In October of 2018 family and friends from around the world rallied in front and behind us to support our son Mason during the annual STXBP1 Virtual 5K. Everyone joined in right where they lived to walk or run to support our son and every kiddo with this disorder.
Mason was diagnosed with a vary rare genetic disorder in May 2018. While the diagnosis gave us more questions than answers, it gave us a name and a community of other parents and kiddos.
The STXBP1 foundation supports research for a cure as well as providing a connection point for parents and researchers.
The STXBP1 Foundation raised over $10,000 with the Virtual 5K and had support from the whole community in so many pockets around the world.
We are so grateful for everyone’s support in 2018 and can’t wait to do it again in 2019.